Abstract
Online health communities provide a knowledge exchange platform for a wide range of diseases and health conditions. Informational and emotional support helps forum participants orient around health issues beyond in-person doctor visits. So far, little is known about the relation between the level of participation and participants’ contributions in online health communities. To gain insights on the issue, we analyzed 456 posts in 56 threads from the Dermatology sub forum of an online health community. While low participation threads (’short threads’) revolved around solving an individual’s health issue through diagnosis suggestions and medical advice, participants in high participation threads (’long threads’) built collective knowledge and a sense of community, typically discussing chronic and rare conditions that medical professionals were unfamiliar with or could not treat effectively. Our results suggest that in short threads an individual’s health issue is addressed, while in long threads, sub communities about specific rare and chronic diseases emerge. This has implications for the user interface design of health forums, which could be developed to better support community building elements, even in short threads.
Original language | English |
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Title of host publication | 2022 IEEE 10th International Conference on Healthcare Informatics (ICHI) |
Publisher | IEEE |
Pages | 348-356 |
ISBN (Electronic) | 978-1-66546-845-9 |
DOIs | |
Publication status | Published - 11 Jun 2022 |
MoEC publication type | A4 Article in a conference publication |
Event | ICHI 2022 : 10th IEEE International Conference on Healthcare Informatics - Rochester, United States Duration: 11 Jun 2022 → 14 Jun 2022 https://ohnlp.github.io/IEEEICHI2022/ |
Conference
Conference | ICHI 2022 : 10th IEEE International Conference on Healthcare Informatics |
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Abbreviated title | ICHI 2022 |
Country/Territory | United States |
City | Rochester |
Period | 11.06.2022 → 14.06.2022 |
Internet address |
Keywords
- online health communities
- collective sensemaking
- online health forums
Field of science
- Public health care science, environmental and occupational health
- Computer and information sciences